Thank you, thank you, thank you, you're far too kind

I'm taking a quick time-out in the story of my surgery to dedicate a post to the people that have helped me to be able to keep a positive attitude throughout my experience as a BRCA gene carrier. I've gotten a lot of feedback about my seemingly "always positive" perspective on things - and while that is a generally true statement - there have been days, or more specifically nights, that I have cried my face off over this whole thing. I have had meltdowns that I was not aware I was capable of having, and cried harder than I knew that this could make me. So I have to give credit where credit is due. The only way that I have been able to maintain my sanity, and positivity is with the support and encouragement that I've gotten from my friends and family.

Two years ago, a couple days before my 30th birthday, my doctor called with my positive test results. Since that day I have been trying desperately to make sense of what that meant, and to find a way to fall asleep without letting the worries of breast and ovarian cancer keep me up at night. I had no concept of how much this would effect me mentally. There are feelings of guilt, worry, fear, you name it... And they come and go constantly. They change from one extreme to the other, from one day to the next. I tried to keep my cool, and make sense of it all but I only really began to feel better when I opened up about things to other people. I would not be so positive on my own. 

My girlfriends were relentless in their efforts to feed me red wine and show me a good time, and for that I am forever grateful. The number of nights that they've shown up and been there for me blows my mind. My sisters have endured a 24 hour a day, 7 days a week, and 365 day a year group text chain that receives minimal down time, thanks to my constant need for reassurance, advice, and attention. They are the most honest and unwaveringly supportive people I will ever have. My friends, and friends of friends, have given advice on doctors I could see, people that I could talk to, articles to read, etc. - they have genuinely gone out of their way to help me. And they have done that without me even asking. My family has been a constant support system, reminding me that no matter which decisions I make, they will always be there to support them. My point is that even from the very beginning of all of this, I have had so much help. It has meant so much to me to have people that have put themselves in my shoes, and given their honest opinion, as well as support and understanding. I could have never come to the decision to go thru with my surgery without that help. 

a bye bye boobies dinner with the best gals around

Some of you may have caught wind of my aunt's "Sue Strong" hashtag that is sweeping the nation -- ok maybe not the nation, but it was kind of funny to see how many people spread that around. Thanks for the cyber support, guys. Sweet glamour shot of me sitting in the Grand Canyon.. But in all seriousness, I was so genuinely overwhelmed by all of the friends, family, and people that I haven't spoken a word to in ten years (seriously) that reached out to send me get well wishes after my surgery was done. With all of the hate, selfishness, self-righteousness, and just general lack of empathy, compassion, or understanding that has been flooding our news feeds these days, I can attest to the fact that there are still good people out there. I've realized that I am surrounded by a ton of them.

While I'm not the most religious person, I am thankful and better off because of all of the people that said they would pray for me. I am certain that the positive energy that I felt from reading cards, texts, Facebook messages, emails, and whatever other creative form people's get well wishes may have come in, helped me heal. The flowers that filled up the room made laying on the couch for hours on end much more bearable. I got care packages that had some of the most thoughtfully picked out items - from armpit pillows (life saving), to Entenmann's pound cake - that made me feel so thankful to have the people that were on the other end of them. I was so happy for the visitors that stopped by but understood that I couldn't stay awake for more than 30 minutes at a time, and the ones that came every day and pushed me to get out of sweatpants and brush my hair. I am a big believer in the power of positive thinking, and genuinely appreciate all of the good vibes that were sent my way, in whatever form they may have been. Special shout out to an uncle who will remain nameless that sent them in the form of the special flower delivery, did wonders for the pain ;) 

So yea, I'm a fairly positive, "glass half full", kind of person - but this stuff would have been too much without the extra dose of positivity that people generously shared with me. I wanted to make sure that it didn't go without mentioning just how impactful we are on one another - and how you have all been on me. When you are kind to someone else, it really can change their day. Our circumstances are what we make of them, but to have good people around you to help make them a little more bearable is a serious advantage. It is not lost on me how lucky I am. Thank you for keeping me smiling, even when I was incapable of wiping my own ass. 

The Big Day


I want to be as honest as I can with my story, because that's what I was trying to find before my surgery. There are a lot of medical documents, and doctors accounts of this procedure out there in the land of Google, but I'm hoping to give a more candid look at this process. I'll forewarn readers now that I'm planning to include some photos that might be deemed NSFW. So shield your eyes if you aren't into post-surgery boob pics. I know that it shows a lot of me, but I'm ok with that if it's helping to give a more genuine look at this whole process. I hope that no one is offended by that. I did not go and get a boob job - that part comes later. Angelina Jolie shared her BRCA story a few years ago and miraculously looked like a flawless magical creature pre and post surgery, me, not so much. Fingers crossed that my plastic surgeon has the skills of her doc. This hasn't been pretty, but it's been worth it... you've been warned...

All that I wanted was to see real progress pictures when I was trying to come to a decision on getting surgery, I wanted to know what I was in for. I figure that might be just what another BRCA girl is needing too -- if that girl is you, and this blog finds you, I hope it helps. 

Surgery day: Beth Israel Deaconess Medical Center, Boston

It's sort of insane how quickly days go by leading up to something that you aren't looking forward to. But the days, or even hours, leading up to something like a vacation seem to move by at snail speed. Tuesday, May 24th came out of NO WHERE. I went to the hospital with my mom, checked in, and headed up on my own to get "prepped".  I changed into a robe, hospital socks, and hospital underwear (hot), and had my IV started. I signed a few forms, and my mom came up to hang with me. My surgeons came by, Dr. Lee (plastic surgeon) drew on my bare chest and marked where my incisions would be - reality starts to set in. Dr. Kansal, the breast surgeon, came by for a pre-game pow wow with Dr. Lee and I, went over the basics, and reassured me that everything would go smoothly.

I got texts from friends and family, wishing me good luck, sending their love, and sending adorable baby pictures to make me smile (they did, thank you).

The anesthesiologists came by offering optional pain med injections that would supposedly be much to my benefit on the other end of surgery - after a little bit of debate over being poked with additional needles, they convinced me that it would be worth it. I was sold once they told me that they would give me what felt like the equivalent of 6 tequila shots. I love tequila! Ole! A needle in each shoulder, and I was immediately on another planet and being wheeled to the OR - complete with a grand exit of lifting my gown over my head while yelling to anyone with decent hearing on that floor to "SAAAAY GOODBYEEEEEE TO MY BOOOOOOOOOBIEEEEES!". That was some good fucking tequila! Mom, you're still in the doghouse for not getting that on video, but thank you for at least being there to witness it. 

There's a split second of remembering seeing my doctors face before going under, and her asking me what beach I wanted to go to today, I told her the sunsets on Saratoga Lake were beautiful. Take me there please, mam!

And then six hours went by in the blink of an eye. My breast surgeon performed a full double mastectomy, scraping out my entire chest cavity, but preserving a minimal amount of tissue to support my nipple. The plastic surgeon stepped in next and fit expanders (empty rubber balloons) under my muscle. We'd get to filling those up in a few weeks. He stitched me back up, good as new - well, kind of. Good as new, with no boobs. But also, good as new with no breast tissue left to get breast cancer in, and that's what we came for. 

Post Surgery....

The next 24 hours was a bit of a blur. I woke up in recovery, crying and sort of screaming, oopsies. I overheard my nurse making a request for Ativan. "For pain?" another nurse asked, "No, emotional distress, can't you hear her??". To which I said thru sobs, "I can heeeeear youuuuuu, I'm fiiiiiine." Ativan was cool though, that made me feel like a sloth, a very happy sloth. A two hour nap somehow flew by, and I was being wheeled into my room. I ran into my Dad and Stepmom in the hall on the way, "Hey guuuuuuuuuys!", I seemed to be in better spirits.

Getting back to my room is foggy, but I can't forget the feeling of trying to sit up. My chest weighed thousands of pounds, and my arms felt like they were made of lead. And so begins the helplessness... I was so happy to have my Mom, Dad, and Stepmom waiting for me when I get out - familiar faces were huge. I was very insistent of having my phone and being able to respond to people - texting was the only thing that my T-Rex arms were capable of, so I wanted to at least do that for myself. 

Visitors came and it meant the world to me. I asked the nurse for more pain meds every two minutes, not realizing that only two minutes had passed. I had a drain hanging out of each armpit, with a long tube that hung down along my side to a little bulb that filled up with what I am calling 'goo', that leaked from inside my chest. Cute. Little did I know how much I would grow to hate those drains. I had a big surgical bra on, stuffed with thick gauze pads, and my actual chest and incisions covered by what looked and felt like plastic wrap.

At one point the doctors said that they had to check the incisions, I didn't want to take my bra, or bandage off - ever. Let alone right then and there. I was terrified of what was under there. I was hoping that I could be wrapped up mummy style until they were fully healed -- not the case! They peeled things off, and I closed my eyes, but I made sure to have my mom take some pictures for me to look back at when I was ready. I'm ready now, so here they are...

thrilled, clearly...

thrilled, clearly...

Apparently clenching every part of my body to hold in tears... I was definitely not ready to see beneath the bandages yet

Apparently clenching every part of my body to hold in tears... I was definitely not ready to see beneath the bandages yet

 

The day flew by, and we bent the overnight visitor rule so that my mom and my man could keep me company. Hospital beds aren't exactly made for two, but that was helpful since I needed to be propped up on all sides to stay comfortable. Comfortable, by the way, is a word that changes meaning drastically after this surgery. I haven't been comfortable by my previous standards yet, but I have found what my new comfortable is, and I've adjusted. That night I half slept, and half laid awake wondering when I could get more pain meds. It wasn't the best nights sleep, but I've had worse - like the next nights, that one would be much worse.

momma <3

momma <3



The next day was a combo of being poked and prodded, pumped with meds, and just waiting around. I felt like a blob, or maybe a sausage. Most of my body parts looked like sausages. They fail to warn you about the post-surgery bloating. It's tough to have a "fat" day normally, but chop your most feminine parts off and throw extra pounds that you don't want in the mix on top of it, it can be a bit of a downer. When I'd whine about anything appearance related I had to remind myself that I'd never need chemo. I'm not going to get breast cancer. That's what's important. 

this is me on lots of drugs, waiting for my mom to get the car from the parking garage, in my slipper socks, completely unaware of how much pain I am actually in, woo! ignorance is bliss!

this is me on lots of drugs, waiting for my mom to get the car from the parking garage, in my slipper socks, completely unaware of how much pain I am actually in, woo! ignorance is bliss!


I was shocked when they said that I'd be able to leave later that day, considering I could barely make it to the bathroom next to my bed on my own, but very excited at the idea of getting out of there. Drugged up, and still slightly unaware of the weight of everything that had just happened, I got into the car with my mom, blinked, and was home in New York.